Roller coaster ride

One thing I dislike about keeping people informed of Annie's status is having to include others in this sicko roller coaster ride from which we can't seem to escape.  It seems we are barely able to catch our breath from one plunge before we shoot to a crest and then plummet again.  We try sooooo hard to figure out how not to get swept up in the vagrancy of it all but we've yet to unlock the secret to accomplishing that.

So, if you haven't guessed, we got the blood counts late today and they were down.  Not that this isn't exactly what is expected.  It will take months of volatile blood counts before we have a sense if things are working as we'd hoped.  It's just that her ANC took a nose dive from 2000 to 240 in four days. Now there is the possibility of lab error and white counts bounce around a lot but it still sets off a whole new set of logistics.  We have to switch to home isolation mode and virtual school.

Her other counts, for those who track this, are hmg 8.8 and platelets 8,000.  Her medical team wants to avoid transfusing so we'll hope for the best and see how her body responds.  The next blood test is Thursday and I'll update when we get those results - which sometimes takes a day.

I've had a number of people have trouble setting up an account so they get an email when there is a new posting.  If you would like me to set this up for you I can do it on my side.  Just email me or leave a comment and I will do so.  This way there will be no need to check for updates, they will automatically be sent to you.