It's one thing to try and convince an adult they have optimism bias but trying to convince an 11-year-old is, well, optimism bias. We're currently struggling with bloody nose relapses. After two or so weeks with the new protocol it was tough to convince Annie she needed to apply gel three times a day and spray her nose throughout the day and keep up the incessant water consumption. Things got lax, the air got dry and the bloody nose came back. We got it under control again but then after a smooth period the push back resumed. "Mom, my nose is fine. I don't need the spray. I can tell." Uh, huh....another bloody nose. "Mom I should always listen to you. I promise I won't fight you." Great but then a few days later.... We're waiting out another bloody nose now and weighing when to get the next transfusion.
Her test schedule has been made and it's quite an itinerary. On April 11th she has 9:30 labs and IV, 10:00 Pulmonary function test, 11:00 GFR, 12:00 Chest X-ray, 1:30 CT prep, 1:45 Bone age X-ray, 2:30 CT scan, 3:30 EKG & Echocardiogram, next day 10:00 bone marrow test. Can't wait.
