Day 4: The whole eating thing is up and down. She'll feel like something but then it comes back up later. Same with her energy level. She'll have some energy but then get very worn out. There is a lot she needs to do medically and therapeutically so we're learning how to best balance her good moments and energy to do what needs to be done but also give her enough fun to keep up her spirits. It's a dance and we're still tripping all over ourselves.
We will look for evidence of engraphment starting around days 18-21 so for now it's about keeping her safe from infection and germs as well as trying to build up her strength.
I noticed on the patient white-board in the room that someone wrote Day 50 under "target discharge date." I'll do the math for you, that's July 3rd. Can you imagine spending 58 days in one room! Before we only clocked 30. Since I wasn't here this morning I didn't know the origin of this message but upon just checking with Tom I learned that Annie put it up there. Things can get confusing when you tag team.
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