Day 0: Well the stem cells made it and started dripping in about 3 AM.
When she had her first transplant we were warned how bad the next two weeks would be but none of that came to be. Since she had received her own stem cells, stored at birth, and since she was the first to have that, everyone was pleasantly surprised how well things went. That is not the case this time.
Today has been horrible. Acute pain moving from one place to another. She's on morphine and we've had to up the dose. Not having been through this part before we're in a bit of shock and regrouping as to how we'll manage two weeks of this. For the kids who communicate with Annie things may be on hold for a while.
There is little to be done but endure this. The hospital staff is working to manage the symptoms best they can. This is the body's reaction to having an onslaught of something unfamiliar pouring in. The loving prayers and support are felt and we continue to appreciate them.
Oh, Melissa. That really stinks! We are praying that it's not 2 weeks of this. Anything we can do to help Katherine or your step dad, please call. My neighbor across the street goes to COH every morning. She can bring anything you might need from home. Just let me know.
ReplyDeleteI'll let the 6th graders know. We pray for her continuously, of course. MA
ReplyDeleteIn our prayers and hearts, each day.....each and every one of us...
ReplyDeleteOh my God, Melissa. I am so sorry. Know that your presence with her is a huge support. Please remember to take of yourself too. Lots of love.
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