Ahhhhh

Day 25: This is our home pharmacy.  On the upper right is Annie's special mask.  It gets dated and is good for one month.  It also gets kept in its own bag.  She wears this when she goes out, which at this point is only to go to the hospital.  Below that is a yellow paper listing all the things that could go wrong and require us to call the hospital.  To the left is a list of her medications and when she takes them.  Below it all is the pile of daily meds.  Shocking really but they are mostly to protect various organs and to fend off GVHD.  So far our only GVHD issue seems to be nausea.  For the most part we are controlling it with that blue-lidded medication but as it starts to wear off Annie gets queasy as she is right now.  So we have to wait until she can take it again so she can keep down her evening medicine and do her mouth care.

Annie hates mouth care.  She has to swish one liquid for 15 seconds and then suck on another pill for 20 minutes.  She does this four times a day as she has since she entered the hospital.  It's kind of the bane of our existence at the moment.  Oh what a coincidence I just got interrupted to go argue about mouth care.

Anyways all that aside it was a very pleasant day.  She played around the house and we could manage all her affairs while also tending to other things.  We ordered a new pump for her evening fluids and Tom spent a lot of time learning how it works.  It is also nice not to stress about wondering what her blood counts will be every day.  We'll have to wait until Tuesday afternoon for that when she goes in for her next appointment.