These days it's all about getting Annie to her Girl Scout trip. Her health prevented her from attending her class trip to Joshua Tree but she was adamant that she was not going to miss the annual Girl Scout trip. We planned tomorrow's dental cleaning just so that she'd have to have a platelet transfusion right before the trip as her high point of last year was riding the zip line. This is no easy feat for a body with low platelets nor a nervous mother. However these are the things Annie fights for, the things that get her through the rough spots and we try not to let fear or reasonable risk take that from her. We thought the hemoglobin from last week would still be with her but no go. Today's counts were hmg 7.6, plt 8,000, ANC 780 and CSA 192. We got the medical team behind giving her a red cell transfusion in addition to the platelets so she had the best chance possible of successfully making it through her scouting trip. Thus the short hospital visit we had planned turned in to a full day but now she's tanked. Here's to hoping that my next posting will be after Monday's blood draw and it will include a picture of her on the zip line - a true miracle for a kid with aplastic anemia.
Honey bee, I'm praying that Annie can ride on the zip line with her girl scout peeps.
ReplyDeleteI would love to ride the Zip with her! Maybe someday we will.
ReplyDeleteLove to you!