Day 90: 10 days to go. Annie's summer of seclusion is about to come to an end and today her doctor gave the go-ahead for her to at least begin school on August 28th - a mere six days after Day 100. The doctor stressed that this is not the norm and that very few of the pediatric patients will be resuming school on time. Annie's relatively smooth recovery so far is thanks in great extent to all those who came before her and the medical professionals that meticulously refined their craft from each patient's experience. We know some of those patients and we are indebted to their struggles which were studied and learned from to help give kids like Annie a smoother ride.
Today was Annie's first needle poke in three months - now that her Hickman has been removed. She handled it like a champ and, for the first time in seven years, did not sit on my lap or hold my hand to have it done. Annie's white and platelet counts stayed in the normal range and her hemoglobin took a step up to 9.4 from 9.0. This is a happy development and hopefully means she won't need any more transfusions. Her creatinine level however is elevated so she will add another specialist to her arsenal and is scheduled to see a nephrologist in a couple weeks to tend to her kidneys. Until then we'll stay even more vigilant about keeping up her water consumption. Already a timer goes off every 30 minutes for her to drink 2 oz of water all day long but we'll redouble our efforts and hope for improvement by our next appointment in two weeks.
We'll plan to post on Day 100 when we hope to take Annie out into the big world to celebrate.
Sounds like great progress!
ReplyDeletePraying for a new style of life for Annie one without constant doctors visits!
Love You!