Sunday, September 16, 2012

Head, shoulders, knees and toes...


I can't help but think about this children's song when looking at Annie.  It seems the trouble spot rotates from one place to another.  The "smurfs" continue to keep the bloody noses under control.  She'll get a little drip but it stops.  No four-hour nose bleeds or night-alarms for over a week!  Also she has had enough energy to get through school, after school activities and homework while staying in a good mood.  That too is a welcome change.  However we just seem to move on to the next territory.  

We happily changed out her blood spotted sheets hoping the new set would stay clean but no, a patchwork of spots greeted us in the morning.  Turns out she's cutting molars!  And although the blue arm is starting to fade, being back at school and having more energy has led to black and blues all over her legs.  Also she still needed a transfusion Friday (hmg 7.5, plt 6,000) and she has run out of arm veins so they moved on to her hands.  The first poke failed so both hands now have bruises.  

Annie, however, is nonplused by any of it.  She got Emily's pajamas and could care less about the reason.  She is full speed ahead for the next medical event as long as it means more Emily loot.  It actually brings tremendous comfort that she has something to balance out any negative feelings she might have about the future.  

We have our first meeting planned with the BMT team a week from Monday.

2 comments:

  1. Lots of Prayers for the BMT team finding a perfect match!!

    ReplyDelete
  2. Thinking about you as I see my patients. I wish that I could truly convey my
    admiration for all of you. Love you.

    ReplyDelete