For the most part no news was good news these past few weeks. Over four weeks Annie had only two bloody nose crises but we didn't need to go to the ER for either. She also only had one full day of transfusions. If she keeps to using a saline spray every 30 minutes her nose seems not to dry out and crack. We even managed a nice vacation and Annie celebrated her 12th birthday.
Now we switch to medical mode and all plans start to revolve around her care. This Thursday she'll have an IV and blood testing, a complete ventilatory study, NM renal w/ GFR, X-Ray chest PA and lateral, CT oral contrast, X-Ray for bone age, CT neck, chest, abd and pelf, CT brain, CT sinus and echo/EKG. Then Friday she gets a bone marrow biopsy. April 22nd she has measurements for her total body irradiation, doctor's appointment and maybe transfusions. May 2nd a day of transfusions, May 3rd surgery to install a port and May 5th she gets admitted. That's a line-up we'll surely be taking one day at a time and trying not to think about any more than necessary. Will update after this week's procedures.
No comments:
Post a Comment