Wednesday, January 25, 2012

Fuel gauge





Unlike cars, unfortunately, we don't have little fuel gauges on our t-shirts so we didn't realize Annie was going to run out of gas at school this morning.  (Special thanks to our miracle-working neighbor!) Although her blood levels are checked weekly, it is best for her to have as few transfusions as possible so it's always a guess as to if she can make it another week.  She's hanging out on the couch taking it easy now and all is ready at the hospital to refuel her tomorrow.  So as not to paint the wrong picture of her status, let it be known she is looking forward to playing guitar and singing in two numbers and doing a tap routine in a third at the school talent show on Friday.  I'm not kidding when I say this is like a roller-coaster, she can go from 0 to 100 in a matter of hours! 

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